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Showing posts with the label Children's Hospital

Back to Seattle

In January we saw our local endocrinologist for the first time.  He was lacking in eloquence and was quick to condemn the process that we had taken to get to him, however, he assured us that he was going to get Lily to a good place.  Since seeing him she has been on a consistent does of thyroid meds in hopes of regulating her body and beginning to feel better.  Unfortunately, she's not feeling better.  Her symptoms are exactly the same.  Dr. W ran two sets of tests.  The first included and ANA test which measures whether or not autoantibodies are present. This is the 2nd time this test has been run and for the second time, it is positive.  By itself this does not diagnose anything, but it indicates that further testing is needed.  You can read more about it here .  In any case, his suggestion is that we go back to Seattle Children's.  We have an appointment for a full rheumatology and endocrinology workup on April 25. The second set of...

Children's & MRI

Short version: Today's Children's Hospital visit didn't give us answers. We are waiting on labs and a new specialist.  The MRI was clear, and Lily is still lactating (for more on that fun fact, read on...) About 10 days ago, Lily emerged from her therapists office, shyly.  We are close.  She tells me everything. For her to be shy was unusual.  Turns out, she's been lactating - for about 3 weeks. She didn't know it wasn't normal and was really embarrassed about the whole thing.  During school she'd feel the leakage begin and just hope that it wouldn't show through her shirt.  She talked with her therapist about it - only to discover that, it is not normal for a 15 year old to lactate, unless pregnant or having just given birth. Lily has never even seriously held a boys hand, let alone being pregnant.  Barring divine intervention, this was a new problem.  I called her doctor (and bought the poor girl nursing pads).  A blood test revealed high...