Simple Life

Weeks ago, I took Lily to an endocrinologist here in the Tri Cities.  The man left a lot to be desired in regards to bedside manor, however, he promised answers.  He essentially told me that all the steps we had taken in regards to helping Lily thus far were a waste.  He didn't blame us, but rather the other doctor who started us on this journey.  He was frustrated at the multiple changes in meds Lily had undergone in just two months.  Under his care, Lily is starting over.  He took her off all her meds for a week, then started her back on them at a small dose, to be increased over time.  Monday will mark two weeks at the low dose and the start of the higher dosage. In six weeks we will return for all new testing. The only upside of the lower dosage is that Lily has had less nausea.  She is able to get through her morning without hovering near the bathroom or lying on the couch in a ball.  The downside? She's a mess.  On a daily basis ...

I realize I have not updated anyone; I apologize. I keep waiting for news, something definite that I can share.  I don't have that yet.  I'll give you what I have, which is I essentially more waiting. The hematologist that we saw at Children's in Seattle called one day between Christmas and the New Year to let us know that Lily's ANA Panel came back positive.  As I understand it, this means that she has antibodies in her blood.  The doctor said a post or ANA panel is indicative of an autoimmune disorder, but more testing would be needed to have any definitive results. There was still some of Lily's blood in the lab, so they used that for the additional tests. I have not heard from her again.  I tried to call today, but the office was closed due to the holiday.  Will call tomorrow.  Also, her prolactin levels have returned to normal and she is not longer lactating. We are all glad for that!   We had a big family vacation scheduled over wint...