Specialist

Weeks ago, I took Lily to an endocrinologist here in the Tri Cities.  The man left a lot to be desired in regards to bedside manor, however, he promised answers.  He essentially told me that all the steps we had taken in regards to helping Lily thus far were a waste.  He didn't blame us, but rather the other doctor who started us on this journey.  He was frustrated at the multiple changes in meds Lily had undergone in just two months.  Under his care, Lily is starting over.  He took her off all her meds for a week, then started her back on them at a small dose, to be increased over time.  Monday will mark two weeks at the low dose and the start of the higher dosage. In six weeks we will return for all new testing.

The only upside of the lower dosage is that Lily has had less nausea.  She is able to get through her morning without hovering near the bathroom or lying on the couch in a ball.  The downside? She's a mess.  On a daily basis we are talking her off the ledge for the smallest challenges such as a lost pencil, hair that won't cooperate, or simply being too tired to even eat let alone do homework or get ready for bed.

At this point, nothing has changed but I feel it is important to update all my friends and family. You have all been so supportive and caring throughout this journey.  I have had many of you reach out to me individually and ask that I continue to provide updates. I wish that I had answers, mostly for Lily.  She's miserable.  She wants to feel well again.  She wants to feel peace again. She wants to know that she is okay. Please keep thinking of her as she continues to try to hide her struggles from everyone and remain strong.

I will update again in a few months when I know more. Thank you for loving us!


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